This is not the kind of post I was going to make today, but after discovering Claire, I had to.
I was planning on posting either another book review (I’ve finished both Warm Bodies and How to be Parisian Wherever You Are for the Empty Shelf challenge!) or my favorite albums from 2014. And then I was thinking of even doing a rant about quotes that turn infamous, but then I found Claire.
I don’t know who knows (I feel like I mention it all the time), but I’m writing a novel. And in that novel I have a character with cystic fibrosis, so, obviously I need to research it. I think it is so important to get everything right because it’s real. It’s not just a way to manipulate a story or tug on a reader’s heartstrings. My character is a girl whose personality develops much further than this diagnosis.
So, in the midst of my research, I came across this video: Perks of Going to the Hospital
Claire immediately starts off her video with a burst of energy and then babbles excitingly about all the cool things they have at the hospital–like every kind of junk food you can imagine, nurses who are obligated to your vent sessions, and so much free time to read.
So, I decided to explore her channel for a bit. It’s fairly new, 3 months old, but I’m obsessed. I’ve been watching her reviews of “Red Band Society,” a TV show on FOX that I love. It’s so interesting to hear her opinions on it, though–especially those about Dash, the cystic fibrosis patient on the show.
But the thing is, yes I find all of her videos fascinating because I’m learning so much more about the life of someone with CF, but that’s not why she’s my favorite. She’s an inspiration, but not because she’s happy despite it all. She’s an inspiration because she’s happy. And funny. And smart. And she makes amazing YouTube videos that I’ve been binge-watching.
She’s setting out to break down the barriers that people tend to have with people who are sick. Many people with CF are isolated (especially from others with the same disease) because their immune systems are weaker and there are so many infections that can spread, but she wants those connections. And I truly relate to that desire.
Well anyway, I just wanted to share her and her channel like I share any other book, song, music group, YouTube video, etc. that I adore.
PS. Song of the moment is Amy Winehouse’s Back to Black. For some reason, this song has been on repeat for days for me, but it’s so good.
PPS. All of the aforementioned posts will be coming soon! (If anyone wanted to know)